Something to Think About

a blog on end of life

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About the BK Team
Denial of a Life Limiting Illness

Denial by the person with a life threatening illness, denial by the caregiver, and I’ll even add denial by some attending physicians. Denial is often the reaction to diseases that have...

Caregivers Need Knowledgeable Guidance

...That caregivers put so much energy, time, love, and concern into taking care of their person that they can become blind to or just plain don’t want to see the...

Always Offer, Never Force: Food At End of Life

My husband Jack  has been dead eight months. In processing the five months from his diagnosis to his death, what stands out most for me is the tension that surrounded food....

The Maps We Need to Care For the Dying

Because of knowledge we’ve lost when people began dying in places other than home, we judge approaching death by the treatments and procedures used in getting people better...

Being on the Receiving Side of Hospice

Once we get up the courage to call hospice, we want to see you immediately.  Actually, we needed to see you, hear your guidance and advice, and receive your services yesterday. Families...

The Difficulties of Being Discharged From Hospice Care

Why is the patient being discharged, you ask? Is it because the patient just didn’t decline as rapidly as expected? Yes, that can be the situation...

Movies Make Dying Look Comfortable. What Do You Do When It's Not?

Our role models from movies and TV show us that dying is gentle, often poetic, certainly not scary or messy. Movies make dying look comfortable.

What Do I Do?  Mom Has Progressive Cancer and is Refusing Hospice.

Tell her honestly what you are feeling and ask for help. Just FYI: she can sign on for hospice and if she felt she needed to go to the emergency...

"I'm So Angry That He's Sick!"

Anger in caregiving generally comes from a place of frustration, of fear, of sadness, of tiredness. All sorts of feelings with no outlet so they come bursting out.

Do You Know About The Gems of Dementia?

I know that dementia doesn’t play by the rules of approaching death. The guidelines relating to food, sleep and sociability don’t fit with dementia. I know that  I am seeing...

Is Increased Sleep a Sign of Approaching Death?

With old age and no active debilitating disease process, all the signs of approaching death (less eating, more sleeping and gradual decline in social interests) occur, BUT they occur over...

Entering Into "Precious Time"

In our medical society today, it seems to be very difficult for physicians to tell patients and/or families that death is approaching; That this special person will die, and probably...

Hospice Services Pulled for Dementia Patient

There is a huge void in our medical system that so many families living with dementia fall into. These families have a loved one too sick and require too much...

Caring For an Elder Who Needs to Eat

The elderly, after a fall or illness, often are not much interested in eating. If there are no other health issues, they gradually return to normal eating. In the meantime...

Is Mom Waiting to Come Home?  FTD Dementia

Dementia causing illnesses, by whatever name we classify them, are becoming more and more prominent. Dementia, and how to care for people with it, has become a big healthcare issue...

Using "Baby Talk" With End of Life Patients

As end of life professionals we have to carefully walk a line.  We are in the tenuous position of caring intimately for adult strangers who often do act as children. ...

Hospice Care Is For the Patient AND the Family

Dying is not a medical event. It is a social, communal event. Dying is not a time for procedures or medications. It is time for support, guidance and reassurance FOR...

Using Subtle Tools To Help Process A Life

In the months before death when the patient is still alert, still actively engaging, watch for clues, for openings to help bring the "what has life been about" thoughts forward...

If I Stop Treatment Will I Start Dying?

I think the reason hospice gets their referrals in the weeks before death rather than months is because hospice implies death will come. We look for and hope for a...

It's Here!  BY YOUR SIDE, A Guide For Caring For The Dying At Home

By Your Side offers guidance in the area of making choices: cure, life sustaining, comfort care, making advanced directives, and funeral planning. It details signs of approaching death (what to look...

Discussing End-of-Life Wishes

I often get the question, "How do I start an end of life discussion? How do I get my family to talk about what they want their dying to be...

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