Our children are not supposed to die before we do. I cannot think of any grief more intense than watching our child deteriorate before our eyes. We grieve their dying and eventual death while also grieving what never will be, what they won’t do, won’t experience, what they won’t become. We grieve a future they will never have...

Our job as an end of life specialist is to address the elephant in the room, to be direct and honest in the gentlest way possible. We are not doing our job, and doing a great disservice to the family, if we don’t talk about Mom’s approaching death, educate, and at least try to prepare the family...

Hospice Bereavement support, as well as any bereavement support program (church, Community Support, Senior Activity Program) is important during the best of times. Now it is vital.  Here are my recommendations; what I would do if I had a bereavement program today during this pandemic...

We bring our fears, our childhood experiences with death, our culture, our belief systems, and our stereotypes to the bedside of the dying and the dead. Generally, none of that is actually how people die...

Hospices seem to be struggling with how to provide services now that being in homes and facilities is not an option. When we cannot rely on routines, when there is no normal anymore, we have to begin thinking of new ways to provide service. We have to start thinking outside the box. We have to create new ways of providing care, new ways of getting education to our families...

Our frontline workers: nurses, nursing assistants, doctors, hospital employees, first responders, housekeeping, grocery, delivery, and transportation personnel, all people who are out front while most of us shelter in place, my admiration for you has no bounds...

During this time of crisis work it is hard to remember to take care of yourself. There doesn’t seem time for that but if you don’t at least try to put “your own oxygen mask on” you will not get the essentials you need to continue. You are carrying fear for yourself (whether realized or not), excess adrenaline just to meet the shift needs (which brings a sense of exhaustion when the shift is over), and non stop 8, 10, 12 work hours, so sleep for you is vital. Don’t neglect the basics, food, sleep, and a release of each day...

People don’t die like they do in the movies—alive one minute, saying something profound and dead the next. There is a way that the body dies. A way it is programed to die. It’s just that most of us don’t think about it, don’t know and generally don’t want to think or know about it. This is part of the death denying society that we live in...

I see families devastated by not being able to be with their loved one as they are dying. I am writing this for any person who is faced with a loved one dying alone in the hospital. My hope is that some understanding hence comfort can be found among these words. This guidance can also be used by healthcare workers when they face the difficult job of telling families they can’t be present. These ideas can’t fix this horrific situation but they can bring a bit of understanding and “something to do” to an otherwise bleak message.

There are many of the same circumstances with today’s coronavirus as we faced with  HIV/AIDS in the early years— lack of medical knowledge, lack of guidance, and fear. I think the same directives hold now as they did then...

Touch in with the families, “What’s happening? Do you need anything?” Use the same volunteer for each family to develop confidence and bonding. You are saving your staff while providing a sense of security  to your families...

Isolation from others is teaching me this about my self ——- I do a lot for others, for their thoughts of me, why else do I wear makeup? Get dressed? Bathe...

I'm sorry to say when a family member is dying it can bring us together and be our finest hour as a family or it can bring out the worse in us and create resentments that last a very long time. From what you are describing this may not be your family's finest hour...

Yes, love of life and fear of death are a part of our personality expression as is our fear of life. In Gone From My Sight I was making a point of how fear plays a part in the length of our labor hence the reference to fear of life...

...If an adult knows at some point in their disease progression that they are
going to die (and they do know whether they share that knowledge with
others or not) why should we assume that children do not know?...

We do this all the time. We enter tense situations where people are frightened and unsure, with people who have never seen us before. This is what we do: We create a bond of trust with strangers at a first visit. Being on call to a death visit is no different.

Your book explained so much. Mom's dying was almost exactly like you explained in your book. In hindsight, I am unsure why we, her family, were not advised, taught, or even given a clue about what was inevitable. We truly kept on fighting and advocating for her to get what we thought to be the best medical care she could get all the while thinking it would make some kind of difference in this outcome...