I Hear You, But I Don't Understand

I Hear You, But I Don't Understand

March 24 2019
...I remember being with my mother in my hospice Medical Director’s office. He was explaining to my mother his medical findings as they related to her illness. I, being a hospice Director and in the medical field, didn’t understand what he was talking about. My mother sat on the end of the examining table nodding her head up and down indicting that she understood. She didn’t....

My Personal Integrity Was Wounded Tonight

My Personal Integrity Was Wounded Tonight

February 26 2019
When hospice began it was outside of the medical model. It provided end of life care based on quality, not quantity, of life. It recognized when physical healing couldn't be accomplished there was emotional, mental, and spiritual healing to address...

Refusing Treatment At Age 93

Refusing Treatment At Age 93

January 23 2019
Why make your mother’s remaining time be unhappy and with more discontent than is already there due to age and illness? Being old is hard work. Our thinking processes aren't as sharp, our memory is diminishing...

Explaining Pet Death To Children

Explaining Pet Death To Children

September 18 2018
Since my new booklet A Place In My Heart, When a Pet Dies has come out I have had several questions about children an...

A PLACE IN MY HEART, When a Pet Dies

A PLACE IN MY HEART, When a Pet Dies

August 28 2018
We can be as much at a loss when our pet is dying as we are when a person is dying but there doesn’t seem to be the support and guidance available for when a beloved pet is dying hence this new booklet...

Pain, Morphine & "Dying in Peace"

Pain, Morphine & "Dying in Peace"

June 14 2018
It is certainly not within our role to act if a person, in the pain of the moment, wants help in ending their life. In the “pain of the moment” are the operative words here. I cannot tell you the number of times I have heard that plea in the throngs of pain, and the relief when that pain is relieved and life continues...

Calories Count

Calories Count

May 14 2018
When living with a life threatening illness we are eating for two---our physical body and our disease. In most cases the disease eats before we do. If we don’t eat, the disease still does. Nutrition will not keep a person alive indefinitely. It does not stop the disease progression. If we have a terminal illness...

The Balancing Act of Caring for the Dying

The Balancing Act of Caring for the Dying

May 03 2018
For healthcare professionals it is often a balancing act to care for patients and then deal with the sense of futility that is triggered when they are doing their job...

DYING Young or Old, The Signs Are The Same

DYING Young or Old, The Signs Are The Same

April 10 2018
There are other signs of approaching death that indicate a person with a disease (at any age) has weeks to live...

The Profound Affect of Dementia on Families

The Profound Affect of Dementia on Families

March 26 2018
I can say that dementia doesn’t play by the rules for end of life. Withdrawing and sleeping can be present for years and does not signify approaching death. Not eating and not swallowing are your key signs. If we don’t eat, we can’t continue to live. Always offer food (be careful of choking), but don’t force food.

THIS IS HOW PEOPLE DIE - my latest film

THIS IS HOW PEOPLE DIE - my latest film

March 13 2018

My message throughout all this time has been to educate, educate, educate. Educate anyone who will listen about how people die. To help people understand how death comes, what it looks like, (a part of life we will all experience one day) is my focus, to neutralize the fear we all bring to approaching death. With my desire to teach as many people as possible I have created a new end of life educational film, This Is How People Die.

Nursing Home Blues, Part 2

Nursing Home Blues, Part 2

February 28 2018
...Fortunately, I suppose, my mother is now bed-bound and we were able to
get Hospice to help out, so she now fits the bill for a 'model patient'... but it
still seems one nurse can wreck her entire day with a bad attitude at
changing time or bath time. And family (which is me) must try to piece back together a mindset that keeps her contented and unafraid. this is a sad time of life. And I do have the Nursing Home Blues, quite regularly...

Telling A Loved One They're Dying

Telling A Loved One They're Dying

December 12 2017
...not telling a person they can’t be fixed is taking away their opportunity to do and say that which is important to them. It is taking away their ability to make decisions based on knowledge of how their life will proceed. It also confuses them in that internally they sense they are not going to get better yet everyone is acting as if they are...

BE GENTLE WITH YOURSELF ~ Grief and Guilt

BE GENTLE WITH YOURSELF ~ Grief and Guilt

November 28 2017
What do I mean by being "gentle" with yourself? I mean forgive yourself for
all the things you feel guilty about. Remember we always do the best we
can with the information we have at the time...

Some Think Hospice Kills

Some Think Hospice Kills

October 30 2017
It is because end of life care is different than caring for someone who is going to get better that we think the care being provided is causing harm. It is because our medical profession is perceived as fixing people, no matter how sick the person is. Hospice care has then failed, has let the person die when death comes.

Food and the Dying Process

Food and the Dying Process

August 09 2017
Dear Barbara, I'm facing the choice of having my mother be fed or not as she is barely feeding herself. I need facts ...