I Hear You, But I Don't Understand

I Hear You, But I Don't Understand

March 24 2019
...I remember being with my mother in my hospice Medical Director’s office. He was explaining to my mother his medical findings as they related to her illness. I, being a hospice Director and in the medical field, didn’t understand what he was talking about. My mother sat on the end of the examining table nodding her head up and down indicting that she understood. She didn’t....

SOCIAL WORKERS: I want to be like you when I grow up

SOCIAL WORKERS:  I want to be like you when I grow up

March 11 2019

This is the story that came to mind when I decided to write a blog for National Social Work month. Social work, to me, is about saying the right words at the right moment, words that have a profound effect on a person’s life from that point forward. Being the listener with just a touch of direction...

BIRTH BACKWARDS, A Daughter's Death

BIRTH BACKWARDS, A Daughter's Death

November 14 2018
At 8:17pm she took one more breath and then at 8:18 there was one more which I describe as hot caramel pouring onto vanilla ice cream. It was the most perfect breath, the most peaceful entering into another portal. I felt like I had had a complete birth experience...

Family Discord As Death Approaches

Family Discord As Death Approaches

October 16 2018
What I have discovered is that a family member dying can bring a family together. It can be their finest moment of closeness and comfort. But for other families it brings out the worst in relationship...

Purpose, Forgiveness and Meaning at End of Life

Purpose, Forgiveness and Meaning at End of Life

August 14 2018
What is the aim of a life review? As a caregiver my aim is not to direct a life review but to be a presence, a listener, and a friend. If life review becomes a subject the patient wants to pursue (whatever words may be used...

Pain, Morphine & "Dying in Peace"

Pain, Morphine & "Dying in Peace"

June 14 2018
It is certainly not within our role to act if a person, in the pain of the moment, wants help in ending their life. In the “pain of the moment” are the operative words here. I cannot tell you the number of times I have heard that plea in the throngs of pain, and the relief when that pain is relieved and life continues...

DYING Young or Old, The Signs Are The Same

DYING Young or Old, The Signs Are The Same

April 10 2018
There are other signs of approaching death that indicate a person with a disease (at any age) has weeks to live...

The Profound Affect of Dementia on Families

The Profound Affect of Dementia on Families

March 26 2018
I can say that dementia doesn’t play by the rules for end of life. Withdrawing and sleeping can be present for years and does not signify approaching death. Not eating and not swallowing are your key signs. If we don’t eat, we can’t continue to live. Always offer food (be careful of choking), but don’t force food.

THIS IS HOW PEOPLE DIE - my latest film

THIS IS HOW PEOPLE DIE - my latest film

March 13 2018

My message throughout all this time has been to educate, educate, educate. Educate anyone who will listen about how people die. To help people understand how death comes, what it looks like, (a part of life we will all experience one day) is my focus, to neutralize the fear we all bring to approaching death. With my desire to teach as many people as possible I have created a new end of life educational film, This Is How People Die.

Nursing Home Blues, Part 2

Nursing Home Blues, Part 2

February 28 2018
...Fortunately, I suppose, my mother is now bed-bound and we were able to
get Hospice to help out, so she now fits the bill for a 'model patient'... but it
still seems one nurse can wreck her entire day with a bad attitude at
changing time or bath time. And family (which is me) must try to piece back together a mindset that keeps her contented and unafraid. this is a sad time of life. And I do have the Nursing Home Blues, quite regularly...

The Nursing Home Blues

The Nursing Home Blues

February 13 2018
As we get older, life presents us with different challenges. We adapt to them in the same way we have lived our life and dealt with all the challenges in our life up to this point---only our reactions become intensified. If we were withdrawn and not very social in our earlier living then as we get older we become more withdrawn, even less social. Think about...

Grief During the Last Stages of His Life

Grief During the Last Stages of His Life

January 30 2018
From the moment of a diagnosis of a life threatening illness we begin grieving. We grieve not just the eventual losses that come with serious illness but the approaching death itself...

How Do I Pick a Good Hospice?

How Do I Pick a Good Hospice?

January 16 2018
There have been many changes in hospice care since it began. Some for the better, some not so much. What I am suggesting as representing a “good” hospice is becoming harder to find. My hope is...

Telling A Loved One They're Dying

Telling A Loved One They're Dying

December 12 2017
...not telling a person they can’t be fixed is taking away their opportunity to do and say that which is important to them. It is taking away their ability to make decisions based on knowledge of how their life will proceed. It also confuses them in that internally they sense they are not going to get better yet everyone is acting as if they are...

BE GENTLE WITH YOURSELF ~ Grief and Guilt

BE GENTLE WITH YOURSELF ~ Grief and Guilt

November 28 2017
What do I mean by being "gentle" with yourself? I mean forgive yourself for
all the things you feel guilty about. Remember we always do the best we
can with the information we have at the time...

I Don't Want Dad To Die On My Birthday

I Don't Want Dad To Die On My Birthday

November 14 2017

Dad was in his 11th hour and it happened to be my birthday. I was mixed on how I would feel if it happened on that day. In talking with the hospice nurse she matter of fact told me he won’t die on my birthday. My Dad died the very next day. Does the patient have any control...

 

Some Think Hospice Kills

Some Think Hospice Kills

October 30 2017
It is because end of life care is different than caring for someone who is going to get better that we think the care being provided is causing harm. It is because our medical profession is perceived as fixing people, no matter how sick the person is. Hospice care has then failed, has let the person die when death comes.

Deathbed Promises

Deathbed Promises

October 18 2017
Dear Barbara, Please talk about deathbed promises. Being at the bedside as a person approaches death is often scary,...
Page 1 of 3