Taking Some of the Fear Out of Dying Alone

Taking Some of the Fear Out of Dying Alone

April 03 2020
I see families devastated by not being able to be with their loved one as they are dying. I am writing this for any person who is faced with a loved one dying alone in the hospital. My hope is that some understanding hence comfort can be found among these words. This guidance can also be used by healthcare workers when they face the difficult job of telling families they can’t be present. These ideas can’t fix this horrific situation but they can bring a bit of understanding and “something to do” to an otherwise bleak message.

Did the AIDS Epidemic Set Us Up To Handle COVID-19?

Did the AIDS Epidemic Set Us Up To Handle COVID-19?

March 23 2020

There are many of the same circumstances with today’s coronavirus as we faced with  HIV/AIDS in the early years— lack of medical knowledge, lack of guidance, and fear. I think the same directives hold now as they did then...

Be Aware of the Risk We Present to Those We Are Hired to Care For

Be Aware of the Risk We Present to Those We Are Hired to Care For

March 19 2020
Touch in with the families, “What’s happening? Do you need anything?” Use the same volunteer for each family to develop confidence and bonding. You are saving your staff while providing a sense of security  to your families...

We've Just Begun Social Distancing~ Here Are My Thoughts

We've Just Begun Social Distancing~ Here Are My Thoughts

March 15 2020
Isolation from others is teaching me this about my self ——- I do a lot for others, for their thoughts of me, why else do I wear makeup? Get dressed? Bathe...

Why Didn't They Tell Me?

Why Didn't They Tell Me?

January 07 2020
Your book explained so much. Mom's dying was almost exactly like you explained in your book. In hindsight, I am unsure why we, her family, were not advised, taught, or even given a clue about what was inevitable. We truly kept on fighting and advocating for her to get what we thought to be the best medical care she could get all the while thinking it would make some kind of difference in this outcome...

Is Talking About Dying Insensitive?

Is Talking About Dying Insensitive?

November 14 2019
We really aren’t doing people any favors by not being honest with them. We aren't giving their families the opportunity to do and say what needs to be said and done. We are depriving people the opportunity to put their life in order, to say “goodbye and I love you”...

What Comes Next? Dementia at End of Life

What Comes Next?  Dementia at End of Life

October 28 2019
Dementia is like a road map with many, many roads that eventually lead into a city. Each road is different, each road is of varying lengths and offers various views but all enter into the city at the same place. That place for my dementia analogy is when a person stops eating...

Mom Needs Hospice? Here are your questions to choose the right one...

Mom Needs Hospice?  Here are your questions to choose the right one...

September 18 2019
There have been many changes in hospice care since it began. Some for the better, some not so much. What I am suggesting as representing a “good” hospice is becoming harder to find. My hope is that by setting the standard high, and...

Do I Want Home Health Services or Hospice?

Do I Want Home Health Services or Hospice?

September 03 2019
I know it is scary to think of using hospice. It says death will happen soon, but there is such guidance and support to help that at least ask for an information visit. A hospice referral is a win-win. You win if hospice says it is too soon and ...

"One Lone Tear", Dementia at End of Life

"One Lone Tear", Dementia at End of Life

August 07 2019
The guilt, frustration, uncertainty, and helplessness of family caregivers is as much a problem to our healthcare system as the patient with dementia...

Developing End of Life Expertise

Developing End of Life Expertise

July 07 2019
You have to walk the walk before you can talk the talk. Learn from your patient/family interactions. At the same time read everything you can get your hands on...

Alzheimer's, Cancer and Hospice

Alzheimer's, Cancer and Hospice

June 13 2019
Dementia isn’t a terminal illness in that it doesn’t have a limited prognosis. It is like dying from old age, it takes longer. Alzheimer’s, or any form of dementia, is difficult to gage as to approaching death. The personality changes and withdraws often over a period of years and sleeping habits are...

Setting Up a Hospice Program

Setting Up a Hospice Program

May 28 2019

...You really don't need a doctor or nurse at the bedside when someone is dying. You need someone who understands the natural way people die and can educate and guide those present through the experience. So, first, you are going to select employees that don't view death as a medical emergency, as a medical failure, and particularly don't view death as bad. Sad for everyone, yes, but not bad...

 

Six Months To Live? A Doctor's Prediction

Six Months To Live?  A Doctor's Prediction

January 08 2019
So many factors affect the length of our labor to leave this world that it is imprudent to put a specific time frame on approaching death. The closest we can credibly come to predicting when death is going to arrive is to guesstimate the time in months or weeks with no numbers attached...

Pain, Morphine & "Dying in Peace"

Pain, Morphine & "Dying in Peace"

June 14 2018
It is certainly not within our role to act if a person, in the pain of the moment, wants help in ending their life. In the “pain of the moment” are the operative words here. I cannot tell you the number of times I have heard that plea in the throngs of pain, and the relief when that pain is relieved and life continues...

A Hospice With Integrity

A Hospice With Integrity

May 30 2018
Be the best hospice you can possibly be, provide the highest quality of care with the most compassionate, caring staff your area has to offer. Build a reputation within the community not of how many patients you serve but what kind of compassionate, “we go the extra thousand percent for our patient”, care you provide. Build a reputation within the community...

Calories Count

Calories Count

May 14 2018
When living with a life threatening illness we are eating for two---our physical body and our disease. In most cases the disease eats before we do. If we don’t eat, the disease still does. Nutrition will not keep a person alive indefinitely. It does not stop the disease progression. If we have a terminal illness...

The Balancing Act of Caring for the Dying

The Balancing Act of Caring for the Dying

May 03 2018
For healthcare professionals it is often a balancing act to care for patients and then deal with the sense of futility that is triggered when they are doing their job...
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