Something to Think About

a blog on end of life

We love sharing helpful info on our blog.

About the BK Team
Enter The World of the Person With Dementia

I had someone ask me "Why do all people with dementia feel someone is out to get them?" My answer—not all people with dementia feel or react like someone is...

Keep No Secrets From Those at End of Life

When working with families who ask me not to tell mom, I say that I won’t bring the subject up, but if she asks, I will talk about it.

Do You Know About The Gems of Dementia?

I know that dementia doesn’t play by the rules of approaching death. The guidelines relating to food, sleep and sociability don’t fit with dementia. I know that  I am seeing...

When An Alzheimer’s Patient Begins Hospice Care

Hospice provides care and services for people in the last six months of their life. A doctor must specify, in his/her best opinion, that this person has less than  six...

Hospice Services Pulled for Dementia Patient

There is a huge void in our medical system that so many families living with dementia fall into. These families have a loved one too sick and require too much...

Do We Choose When We Die?

Just think of a woman in labor and what she is thinking about—-getting that baby out. The person that is dying is in labor also, working to leave the physical...

Is Mom Waiting to Come Home?  FTD Dementia

Dementia causing illnesses, by whatever name we classify them, are becoming more and more prominent. Dementia, and how to care for people with it, has become a big healthcare issue...

Dementia- When Does The Dying Process Begin?

There is a reason dementia is referred to as the "long goodbye;" the mind is gone long before the body...

We Have End of Life Doulas-  What about "Dementia Doulas"?

What if there was a doula to support a person during this journey? What if there was a person who was educated in the dynamics of dementia who became a...

It's Here!  BY YOUR SIDE, A Guide For Caring For The Dying At Home

By Your Side offers guidance in the area of making choices: cure, life sustaining, comfort care, making advanced directives, and funeral planning. It details signs of approaching death (what to look...

There Is No Pattern~ Dementia At End of Life article by Hospice Pioneer, Barbara Karnes, RN

Most diseases have a pattern. You generally know what to expect. With dementia there seems to be no pattern, at least as far as approaching death is concerned until they...

NHPCO Hospice Innovator, Barbara Karnes, RN speaks to those who are unable to be with their loved one at the time of death. www.bkbooks.com

Our job as an end of life specialist is to address the elephant in the room, to be direct and honest in the gentlest way possible. We are not doing...

Did the AIDS Epidemic Set Us Up To Handle COVID-19? by Barbara Karnes, RN

There are many of the same circumstances with today’s coronavirus as we faced with  HIV/AIDS in the early years— lack of medical knowledge, lack of guidance, and fear. I think...

We've Just Begun Social Distancing~ Here Are My Thoughts by Barbara Karnes, RN

Isolation from others is teaching me this about my self ——- I do a lot for others, for their thoughts of me, why else do I wear makeup? Get dressed?...

What Comes Next? Dementia at End of Life is an article written by Hospice Pioneer, Barbara Karnes, RN.  She talks about the progression of dementia and ideas for caregivers.

Dementia is like a road map with many, many roads that eventually lead into a city. Each road is different, each road is of varying lengths and offers various views...

International Woman of the Year 2015, Barbara Karnes, RN gives you the questions you need to ask when choosing a hospice for a loved one, or yourself.  MOM NEEDS HOSPICE? Here Are Your Questions To Choose the Right One...

There have been many changes in hospice care since it began. Some for the better, some not so much. What I am suggesting as representing a “good” hospice is becoming...

Hospice Pioneer, Barbara Karnes, RN weighs the pros and cons of home health and hospice care.

I know it is scary to think of using hospice. It says death will happen soon, but there is such guidance and support to help that at least ask for...

"One Lone Tear", Dementia At End Of Life by Barbara Karnes

The guilt, frustration, uncertainty, and helplessness of family caregivers is as much a problem to our healthcare system as the patient with dementia...

Developing End of Life Expertise by Barbara Karnes, RN

You have to walk the walk before you can talk the talk. Learn from your patient/family interactions. At the same time read everything you can get your hands on...

A Hospice With Integrity by Barbara Karnes, RN

Be the best hospice you can possibly be, provide the highest quality of care with the most compassionate, caring staff your area has to offer. Build a reputation within the...

Calories Count by Barbara Karnes, RN

When living with a life threatening illness we are eating for two---our physical body and our disease. In most cases the disease eats before we do. If we don’t eat,...

1 2