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End of Life Guideline Series informs people on how to live with a life-threatening illness, what to expect when someone is dying, what to do to help, managing pain, how to address the fear of death and dying and how to grieve.


Booklet - How Do I Know You? Dementia At The End Of Life -  Caring for someone with dementia presents different challenges than caring for people with other health care issues. It doesn’t “play by the rules” that signify approaching death from disease or old age. This booklet outlines the issues and progress that a person with dementia will probably follow.
“The Eleventh Hour” is the companion booklet to "Gone From My Sight: The Dying Experience" together they have been shown to significantly improve CAHPS scores, family survey results and meet Medicare requirements for consistent family education. Agencies/hospices put these two booklets together in their initial family packets to inform families on the signs of approaching death and how to care for a loved one who is dying.
“My Friend, I Care” is a booklet intended for the newly grieving. It addresses the normalcy of grieving and stages of grief while offering suggestions for moving forward into living. The grieving process is as foreign to us as death. The experience is forced upon us by life situations that have been beyond our control. We become angry, depressed, fearful and anxious. We do not know that all these feelings together represent grief; a normal, natural response to the loss of someone or something.
Booklet - You Need Care Too: Self Care For The Professional Caregiver This booklet is filled with ideas and guidance for the nurse, social worker, nurse’s aide, chaplain, physician, end of life doula, or Eleventh Hour volunteer. Anyone who is immersed in the responsibilities of supporting, educating, and guiding a person and their family through the dying experience can find insight into making their work healthier.
The Final Act of Living: Reflections of a Long-Time Hospice Nurse
The Tree of Life: End of Life Education This end of life coloring book is used as art therapy for both adults and children. The Tree of Life is a concept of death using the metaphor of nature and the cycle of life. (This booklet includes a family tree).
Believing that knowledge reduces fear and that in our society there is considerable lack of knowledge about the normal, natural dying process, Barbara Karnes, RN writes weekly blog articles on end of life issues and answers questions or addresses comments submitted to her web site.  As the number of articles increased so have requests for a printed collection of the easy to read articles, hence the compilations.
Barbara Karnes, RN created the multi award winning "New Rules For End of Life Care" an educational kit that teaches people how to care for their loved one during the end of their life and  will give you the valuable information you need to understand the dying process.  Has information that addresses the behavior changes as they pertain to food, sleep and withdrawal but pain management and the use of narcotics, addiction and overdosing.  Booklets "Gone From My Sight
"  and "The Eleventh Hour" included.
I Am Standing Upon the Seashore: End of Life Education, A Coloring Booklet
 DVD: Care For The Caregiver (28 minutes) by Barbara Karnes, RN  Suggestions for creating a fulfilling work environment, staying balanced and healthy amid constant sadness, and maintaining a happy, engaged personal life.