Patient/Family Education

"I wish I had read these booklets sooner" is something we hear often. By sitting down with your families and reading these together, you establish consistent education within your agency. These materials don't replace verbal teaching; they supplement, enhance, and reinforce the care you provide. Start using them today to ensure your families receive the best possible support.

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End of Life Guideline Series informs people on how to live with a life-threatening illness, what to expect when someone is dying, what to do to help, managing pain, how to address the fear of death and dying and how to grieve.


With over 30 million sold the "Little Blue Book" is the first, most beloved and widely used resource of its kind. Written by American hospice pioneer Barbara Karnes, RN, Gone From My Sight explains the signs of approaching death from disease and old age.
“The Eleventh Hour” is the companion booklet to "Gone From My Sight: The Dying Experience" together they have been shown to significantly improve CAHPS scores, family survey results and meet Medicare requirements for consistent family education. Agencies/hospices put these two booklets together in their initial family packets to inform families on the signs of approaching death and how to care for a loved one who is dying.
Always Offer, Never Force: Food at End of Life
There is much fear and misconception surrounding pain management at end of life.   Pain at End of Life  addresses, in fifth grade, non-medical terminology:  pain as it relates to the dying process fear of overdosing and addiction standardized dosages around the clock administration laxatives uses of morphine sedation as it relates to dying supplemental therapies
“A Time To Live” is literature for the newly diagnosed with a poor prognosis and/or the palliative care patient; for anyone faced with the unpredictability of their future due to living with a life threatening illness. It offers guidance for living and explains comfort control, nutrition, sleep, pain medications, overdosing and addiction possibilities as they relate to a serious illnesses as well as the fear of death that we all bring to this final experience.
Booklet - How Do I Know You? Dementia At The End Of Life -  Caring for someone with dementia presents different challenges than caring for people with other health care issues. It doesn’t “play by the rules” that signify approaching death from disease or old age. This booklet outlines the issues and progress that a person with dementia will probably follow.
“My Friend, I Care” is a booklet intended for the newly grieving. It addresses the normalcy of grieving and stages of grief while offering suggestions for moving forward into living. The grieving process is as foreign to us as death. The experience is forced upon us by life situations that have been beyond our control. We become angry, depressed, fearful and anxious. We do not know that all these feelings together represent grief; a normal, natural response to the loss of someone or something.
By Your Side, A Guide for Caring for the Dying at Home by Barbara Karnes
Barbara Karnes, RN created the multi award winning "New Rules For End of Life Care" an educational kit that teaches people how to care for their loved one during the end of their life and  will give you the valuable information you need to understand the dying process.  Has information that addresses the behavior changes as they pertain to food, sleep and withdrawal but pain management and the use of narcotics, addiction and overdosing.  Booklets "Gone From My Sight
"  and "The Eleventh Hour" included.
The Tree of Life: End of Life Education, A Coloring Booklet and Family Tree
I Am Standing Upon the Seashore: End of Life Education, A Coloring Booklet
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With over 30 million sold the "Little Blue Book" is the first, most beloved and widely used resource of its kind. Written by American hospice pioneer Barbara Karnes, RN, Gone From My Sight explains the signs of approaching death from disease and old age.