Something to Think About

a blog on end of life

Barbara Karnes Books team members Julia, Danny, Barbara Karnes, Cher, and Jacquelyn providing trusted end-of-life education, hospice resources, and caregiver support.

We love sharing helpful info on our blog.

About the BK Team
NHPCO Hospice Innovator, Barbara Karnes, RN writes about caring for a patient with ALS as they approach end of life

Our children are not supposed to die before we do. I cannot think of any grief more intense than watching our child deteriorate before our eyes. We grieve their dying...

NHPCO Hospice Innovator, Barbara Karnes, RN speaks to those who are unable to be with their loved one at the time of death. www.bkbooks.com

Our job as an end of life specialist is to address the elephant in the room, to be direct and honest in the gentlest way possible. We are not doing...

During this pandemic, Award Winning Hospice Pioneer, Barbara Karnes, RN speaks to her gratitude for the front line workers keeping our country from falling apart in her article, Can We Ever Thank You Enough, Front Line Workers?

Our frontline workers: nurses, nursing assistants, doctors, hospital employees, first responders, housekeeping, grocery, delivery, and transportation personnel, all people who are out front while most of us shelter in place,...

During Self Isolation, I Needed A Daily Routine. Do You? by Barbara Karnes, RN

I am now writing this. Here is what I am thinking: The way I have lived my life up to now will probably be changed forever. How long physical distancing...

Did the AIDS Epidemic Set Us Up To Handle COVID-19? by Barbara Karnes, RN

There are many of the same circumstances with today’s coronavirus as we faced with  HIV/AIDS in the early years— lack of medical knowledge, lack of guidance, and fear. I think...

Be Aware of the Risk We Present to Those We Are Hired to Care For by Barbara Karnes, RN

Touch in with the families, “What’s happening? Do you need anything?” Use the same volunteer for each family to develop confidence and bonding. You are saving your staff while providing a sense...

We've Just Begun Social Distancing~ Here Are My Thoughts by Barbara Karnes, RN

Isolation from others is teaching me this about my self ——- I do a lot for others, for their thoughts of me, why else do I wear makeup? Get dressed?...

HOSPICE DEATH CALL~ How To Comfort A Family You've Never Met by Barbara Karnes RN

We do this all the time. We enter tense situations where people are frightened and unsure, with people who have never seen us before. This is what we do: We create...

Developing End of Life Expertise by Barbara Karnes, RN

You have to walk the walk before you can talk the talk. Learn from your patient/family interactions. At the same time read everything you can get your hands on...

WORKING TOGETHER, Hospice & Nursing Facilities by Barbara Karnes, RN

Hospice has worked with nursing facilities for many years now. Our relationship  and interactions with patients and their families is now better understood and better defined. That said, some nursing facilities...

An Unpleasant Memory of Dad's Care, Article by End of Life Expert Barbara Karnes RN

I am sharing this letter and my response because this family is not the only family that has carried memories, sometimes for years, of situations that occurred as their loved...

I Hear You, But I Don't Understand

...I remember being with my mother in my hospice Medical Director’s office. He was explaining to my mother his medical findings as they related to her illness. I, being a...

SOCIAL WORKERS: I Want To Be Like You When I Grow Up by End of Life Educator, Barbara Karnes, RN

This is the story that came to mind when I decided to write a blog for National Social Work month. Social work, to me, is about saying the right words...

BIRTH BACKWARDS, A Daughter's Death by Barbara Karnes, RN

At 8:17pm she took one more breath and then at 8:18 there was one more which I describe as hot caramel pouring onto vanilla ice cream. It was the most...

Family Discord As Death Approaches

What I have discovered is that a family member dying can bring a family together. It can be their finest moment of closeness and comfort. But for other families it...

A PLACE IN MY HEART, When A Pet Dies by Barbara Karnes, RN

We can be as much at a loss when our pet is dying as we are when a person is dying but there doesn’t seem to be the support and...

Where Is The Hospice I Know And Love? by Barbara Karnes, RN www.bkbooks.com

Hospice can not take the experience and sadness of a loved one dying away. Our goal is to help the family create a sacred experience, to help their loved one...

3 Things You Can Do As Someone Is Dying by Barbara Karnes, RN

The hours before actual death is very scary, a "I don't know what to do" time, for anyone present. Someone who knows the normal natural way a person dies can...

A Hospice With Integrity by Barbara Karnes, RN

Be the best hospice you can possibly be, provide the highest quality of care with the most compassionate, caring staff your area has to offer. Build a reputation within the...

Calories Count by Barbara Karnes, RN

When living with a life threatening illness we are eating for two---our physical body and our disease. In most cases the disease eats before we do. If we don’t eat,...

The Balancing Act of Caring for the Dying by Barbara Karnes, RN

For healthcare professionals it is often a balancing act to care for patients and then deal with the sense of futility that is triggered when they are doing their job...

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