Can a Dying Person Choose When to Die? What Caregivers Should Know

Can a Dying Person Choose When to Die? What Caregivers Should Know

In the final days and hours, a person may “wait” for someone to arrive—or let go when everyone is out of the room. Hospice nurse Barbara Karnes, RN, explains the limited control we have over the timing of when we die.

Why Knowing the Dying Process Can Change How We Live Reading Can a Dying Person Choose When to Die? What Caregivers Should Know 2 minutes

I have said, many times, “There are two ways to die — fast or gradual.” Today I am going to address the control we have over our dying. Yes, we have limited control over the time that we die. The operative word here is “limited.”

I don’t know as much about fast deaths, alive one minute and dead the next. My experience is with gradual death.

I have been at the bedside so often watching this dynamic unfold that I truly believe we have “limited” control.

We can stay here a bit longer to wait for someone to arrive. We can die when someone has been at the bedside and leaves the room. 

We can decide life is not worth living anymore and set in motion or speed up dying. We can stay here a bit longer to wait for someone to arrive and be with us when we take our last breath or we can wait until a person leaves our bedside to let go, which is often a gift of protection.

Because of this limited control I encourage those present to talk to the person in the days to hours before their death and tell them everything that is occurring. They will probably be non-responsive, but who is to say they cannot hear. Opportunities are lost if they can hear us and we stay silent.

If you are with someone when they die you are with them because they want you there. If you are not with someone when they die, even though you wanted and tried to be, that was their gift of protection to you.

Yes, we have that much control.

Something more...

When someone you love is dying, questions come quickly. Here's what you need- Gone From My Sight helps you recognize the signs of approaching death, The Eleventh Hour offers calm guidance for the final hours to minutes and after the death. Both are in the End of Life Guideline Series. These booklets were created to gently guide you through the final days and hours of life. Share this with someone caring for a person at end of life.

3 comments

Ann Pitman

When doing my required CPE course in seminary, I was with a number of families who said they couldn’t understand why their loved one was still here. I would ask if there was someone they needed to see before they died, or an important birthday or anniversary coming up that they wanted to be here for. Invariably there was.

Another family, 8 members, literally camped out on the floor in the hospital room their loved one was dying in. For 5 days, There was ALWAYS someone in the room with her, until once when they had all stepped out of the room. In the 5 minutes they were out of her room, she died. They were all upset that “she died alone.” I explained that there are some people who prefer to die alone, a concept they had never considered.

My family has experienced several sudden deaths of both elderly and mid life. While it has always come as a shock, family members all agreed we would prefer to go that way than to have a prolonged, painful death.

When doing my required CPE course in seminary, I was with a number of families who said they couldn’t understand why their loved one was still here. I would ask if there was someone they needed to see before they died, or an important birthday or anniversary coming up that they wanted to be here for. Invariably there was.

Another family, 8 members, literally camped out on the floor in the hospital room their loved one was dying in. For 5 days, There was ALWAYS someone in the room with her, until once when they had all stepped out of the room. In the 5 minutes they were out of her room, she died. They were all upset that “she died alone.” I explained that there are some people who prefer to die alone, a concept they had never considered.

My family has experienced several sudden deaths of both elderly and mid life. While it has always come as a shock, family members all agreed we would prefer to go that way than to have a prolonged, painful death.

Steve Reddy

Great article. As a hospice chaplain I have seen people hang on for weddings, births, visits from estranged family members etc. I have also seen patients who seemed to be doing fairly well and they announce to me “ I’ve had enough and I’m ready to go”. We always have a conversation about this as it is truly a pivotal moment in a persons life. I have had them say, oh maybe tonight, maybe next week, etc. Guess what? They are usually right!!

Great article. As a hospice chaplain I have seen people hang on for weddings, births, visits from estranged family members etc. I have also seen patients who seemed to be doing fairly well and they announce to me “ I’ve had enough and I’m ready to go”. We always have a conversation about this as it is truly a pivotal moment in a persons life. I have had them say, oh maybe tonight, maybe next week, etc. Guess what? They are usually right!!

Pam Michael

I can guarantee that people hear right up until the moment they take their last breath. I saw that at bedside with my own mother, long before I was a nurse. My brother and I were sitting next to her bed, holding hands and picking on each other as brothers and sisters do. We looked over and Mom was smiling underneath her oxygen mask. She had not been responsive to anything for at least 12 hours at that point. But she heard us and was probably laughing her butt off internally at how we were still going at it decades later!
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BK Books replied:
Hi Pam, thanks for sharing. I think sometimes it takes a personal experience for us to truly know something. Blessings to you and your brother. Barbara

I can guarantee that people hear right up until the moment they take their last breath. I saw that at bedside with my own mother, long before I was a nurse. My brother and I were sitting next to her bed, holding hands and picking on each other as brothers and sisters do. We looked over and Mom was smiling underneath her oxygen mask. She had not been responsive to anything for at least 12 hours at that point. But she heard us and was probably laughing her butt off internally at how we were still going at it decades later!
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BK Books replied:
Hi Pam, thanks for sharing. I think sometimes it takes a personal experience for us to truly know something. Blessings to you and your brother. Barbara

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