When it comes to death and dying and preparing Advanced Directives, most of us are ostriches, our heads in the sand, stuck in a "not me or anyone close to me" kind of denial. There is a “not now, I don’t want to talk about it” mentality. Is it a fear that exploring the possibilities of our own death will bring us closer to death? I don’t know BUT I do know we are a death-denying society. It might feel like other people die but not anyone close to us — until it does — then we are so unprepared.
In being unprepared, our finances and day to day issues are unaddressed. Our medical and quality of living "wants and don’t wants" are unaddressed. All these important decisions are now placed on family and significant others. This is a heavy burden for them as they are faced with making life and death decisions for YOU.
This is why we all need to have advance directives (living wills) that explains our finances, our health, and eventual end of life options. How we want to live if we can’t manage ourselves? How do we want the ending of our life to look and feel?
If you don’t have these wishes written, explained, and given to your family, and your physicians, then you will die not in the way you choose, but in the way the medical profession chooses. And that is doing EVERYTHING medically possible to keep you alive.
Advance Directive, no code and DNR — these documents can say for you, "when my heart stops, don't try to restart it."
The object of a full code — the opposite of a no code — is not to address what your life will be if they succeed in getting your heart beating. The object is to get your heart beating, even if the reason why you stopped breathing and your heart stopped beating is not fixable. After a full code resuscitation, the body will likely still not be fixable and you will still die — only your quality of life while you are breathing will be severely affected.
This all sounds harsh and scary but needs to be understood by all of us. A question of “do you have an advance directive” needs to not stop with yes or no, but needs to continue with an explanation of why you made the choices you have.
There are definitely situations when full-coding a person is the right medical action to take. Bodies that are fixable, that have a chance of living beyond just breathing, should be given the opportunity to be “fixed”. My question is why do we try to restart someone's heart that can’t be fixed, that death will be the outcome soon, no matter the interventions?
This is controversial and a lot of people may disagree with my opinion. I don’t have an answer, just an opinion. I’m just giving you something to think about.
Something more…
I encourage everyone to prepare now so your loved ones don't have to. Clearly express your wishes before a crisis. Give your family clarity and peace of mind. Do you have the End of Life Guideline Series.






1 comment
Suzanne Utts
Admittedly this happened nearly 10 years ago a week or so before my husband died. The hospital he was in REFUSED to honor the directives we had in place. We had signed them in the Pittsburgh area and they were ones that were used by all the hospice providers at the time. A few years later, when we were living in the greater Philly area, the hospital refused to honor the document stating that it meant they could actually ignore the DNR that we wanted. (He was dying of kidney failure due to Alzheimers.) It was SO frustrating. We were trying to get him transferred to a hospice facility and it felt like the hospital (which has since closed) was holding us hostage. So we signed the document they basically coerced us into signing. (I was SO glad to get my husband out of there. He got far better care at the hospice facility.).
So I am guessing that I need to see an attorney again to make sure that the laws haven’t changed and that my children won’t be held hostage as I was with their dad’s situation.
Thanks for this article. It will get me moving. Once we get into some milder weather, I will make an appointment with an attorney in Lancaster County which is about 30 miles from where I live. Their fees are about half of what the fees are in the Philly area.
Suzanne Utts
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BK Books replied:
Oh Suzanne, I’m so sorry you had such an inappropriate experience ten years ago. The hospital was out of line in not honoring your wishes. Yes, go to an attorney and get your Advanced Directive updated. Tell the attorney of your previous experience and say you want to make sure that doesn’t happen. Blessings to you. Barbara
Admittedly this happened nearly 10 years ago a week or so before my husband died. The hospital he was in REFUSED to honor the directives we had in place. We had signed them in the Pittsburgh area and they were ones that were used by all the hospice providers at the time. A few years later, when we were living in the greater Philly area, the hospital refused to honor the document stating that it meant they could actually ignore the DNR that we wanted. (He was dying of kidney failure due to Alzheimers.) It was SO frustrating. We were trying to get him transferred to a hospice facility and it felt like the hospital (which has since closed) was holding us hostage. So we signed the document they basically coerced us into signing. (I was SO glad to get my husband out of there. He got far better care at the hospice facility.).
So I am guessing that I need to see an attorney again to make sure that the laws haven’t changed and that my children won’t be held hostage as I was with their dad’s situation.
Thanks for this article. It will get me moving. Once we get into some milder weather, I will make an appointment with an attorney in Lancaster County which is about 30 miles from where I live. Their fees are about half of what the fees are in the Philly area.
Suzanne Utts
———
BK Books replied:
Oh Suzanne, I’m so sorry you had such an inappropriate experience ten years ago. The hospital was out of line in not honoring your wishes. Yes, go to an attorney and get your Advanced Directive updated. Tell the attorney of your previous experience and say you want to make sure that doesn’t happen. Blessings to you. Barbara