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Booklet - How Do I Know You? Dementia At The End Of Life -  Caring for someone with dementia presents different challenges than caring for people with other health care issues. It doesn’t “play by the rules” that signify approaching death from disease or old age. This booklet outlines the issues and progress that a person with dementia will probably follow.
“The Eleventh Hour” is the companion booklet to "Gone From My Sight: The Dying Experience" together they have been shown to significantly improve CAHPS scores, family survey results and meet Medicare requirements for consistent family education. Agencies/hospices put these two booklets together in their initial family packets to inform families on the signs of approaching death and how to care for a loved one who is dying.
There is much fear and misconception surrounding pain management at end of life.   Pain at End of Life  addresses, in fifth grade, non-medical terminology:  pain as it relates to the dying process fear of overdosing and addiction standardized dosages around the clock administration laxatives uses of morphine sedation as it relates to dying supplemental therapies
“A Time To Live” is literature for the newly diagnosed with a poor prognosis and/or the palliative care patient; for anyone faced with the unpredictability of their future due to living with a life threatening illness. It offers guidance for living and explains comfort control, nutrition, sleep, pain medications, overdosing and addiction possibilities as they relate to a serious illnesses as well as the fear of death that we all bring to this final experience.
Barbara Karnes, RN created the multi award winning "New Rules For End of Life Care" an educational kit that teaches people how to care for their loved one during the end of their life and  will give you the valuable information you need to understand the dying process.  Has information that addresses the behavior changes as they pertain to food, sleep and withdrawal but pain management and the use of narcotics, addiction and overdosing.  Booklets "Gone From My Sight
"  and "The Eleventh Hour" included.