When I first became aware of the hospice concept it was the 1970’s. It was an abstract idea that most people couldn’t pronounce, let alone did they know what it wanted to accomplish.
Dr. Elizabeth Kuebler Ross and Dame Cicely Saunders both began saying the "D word" and ever so slowly, minds began to awaken to the fact that everyone dies, that dying can be talked about, and that comfort can be given.
Hospice began as an ideal, a step outside of the medical model. It was generally operated by volunteers and it was financed and maintained by community fundraising and donations.
What is the saying, "you’ve come a long way, baby"? Well, hospice has come a long way since those early days. Today, most people know the meaning of the word "hospice" and the services it provides. There are classes, a multitude of books and written materials, films, and podcasts all about end of life and hospice’s role. There are insurance policies and government medicare and medicaid reimbursement programs.
AND there is a whole month designated to acknowledging the compassionate, dedicated workers who have taken on this very special work. Hospice has become a part of the healthcare system. It is no longer the outsider.
In my booklets Knowledge Reduces Fear volume 1 and volume 2, I have curated a collection of some of my most popular posts. In these posts, I respond to questions and concerns from the community; addressing a wide range of topics on end of life care. Below are a couple of reviews of these two resources.
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I ordered the new booklets #1 and #2. I just finished #1. These publications are very informative, easy to understand and priceless. They are a must for everyone as we all walk this journey. All the other booklets have been very helpful for me. I am a senior widow and this education has helped me to be a support to others. -Margaret D.
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I am a hospice nurse, in an inpatient unit. I love to teach families and patients about hospice and the dying journey. Barbara’s books make things clearer for families without overwhelming them with information. I am so thankful for these books and the info they provide. Thank you so much for sharing your wisdom! - Ruth R.
