Articles and Interviews With End of Life Care Expert Barbara Karnes, RN

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Podcasts

The Dying Experience — Myths and Answers

Podcast #171: The Art of Manliness, A Man's Life Podcast by Brett McKay, January 22, 2016

All of us are going to die someday. And most of us will have loved ones who will die from disease or old age before we do. In fact, some of you listening right now may be dying yourself or watching a loved one die.

Yet most modern Westerners aren’t prepared for the actual event of dying because we’ve done such a great job cordoning it off from the rest of life. If you’re a young person, you’ve likely never seen a person who’s dying.

Consequently, there are lot of myths and misconceptions about the dying process. There’s also a lot of fear — both for the person dying and those watching them die.

But my guest today has devoted herself to educating people about the dying process and showing people that it’s more than a medical event. Her name is Barbara Karnes. She’s a hospice nurse and the author of several books about dying and how to bring it back to the natural part of life that it is.

Today on the podcast Barbara and I get into what to expect when you’re in the twilight of life and how you can make the experience less scary and more meaningful.

“New Rules for End of Life Care,” Part 2 of 2

Episode 30 - Dance to Death Afterlife Podcast by Brant Huddleston Jan 21, 2016 | Matters of the Heart, Planning for Death

In part one of this interview we met Barbara Karnes who spent decades working as a Registered Nurse and was present for the deaths of hundreds of people. The observations she made during those sacred moments, and the lessons she learned, led Barbara to craft a new way to think about dying, one that will transform how families might help a loved one die, and how you might help yourself when your time comes. Her compassionate wisdom is offered in a kit that includes two easy to read booklets and a copy of her new award winning film “New Rules for End of Life Care.”

Now if you haven’t had the opportunity to listen to part one, you might want to jump over there and take a listen, because that’s where we first meet Barbara, and where she talks about how to recognize the signs that someone is dying, and some specific things you can do to help a loved one when they are dying. In this part two we dig deeper into what’s in Barbara’s kit, how it helps, and we take a trip in the Dance to Death time machine into the future. I even ask Barbara if Grandma should be allowed to spark one up and get stoned in her dying days if that what she wants. I think you’ll be surprised at her answer.

Please join me now for part two of my two part interview with internationally respected speaker, educator, author, thought leader, and now, award winning film producer, Barbara Karnes RN.

“New Rules for End of Life Care” Part 1 of 2

Episode 29 - Dance to Death Afterlife Podcast by Brant Huddleston | Jan 21, 2016 | Matters of the Heart, Planning for Death

While at the bedside of hundreds of people during the dying process, my guest Barbara Karnes, a Registered Nurse, noticed that each death was following a near identical script. Each person was going through the stages of death in almost the same manner. And most families had the same questions. These realizations led Barbara to sit down and write the “Little Blue Book” —  a book that changed an industry. Written in non-medical language for families, her booklet changed the way we experience the death of a loved one, because with knowledge comes understanding, and understanding reduces fear.

Barbara’s most recent project is a 25 minute film called “New Rules for End of Life Care,” in which she compassionately explains the stages of the dying process, talks about behavior changes as they pertain to food, sleep, and withdrawal, and addresses issues relating to the use of narcotics, addiction, and overdosing. The film is racking up more awards than I can list, and when you listen to Barbara speak, you’ll know why. Hers is the voice of wisdom, grace, experience, and kindness.

Yoga Chat with the Accidental Yogist

Episode 219 - Life Matters

After seeing "New Rule For End of Life Care" at the Awareness Festival, Joni Yung sought out Barbara Karnes, RN to be a guest on her Podcast to talk about the film. "New Rules for End of Life Care" gives information on end of life care that addresses not only the behavior changes as they pertain to food, sleep and withdrawal but pain management and the use of narcotics, addiction, and overdosing.

Barbara Karnes and Demedicalizing Dying

Journey Podcast: Deanna Cochran

Deanna Cochran interviews Award winning author and nurse, Barbara Karnes has seen the evolution of the hospice movement from the beginning and has seen what is working and what is not. We have a very frank discussion in this episode of how the new wave of death awareness may fit in to help fix the weak areas in our present system.

Radio Interviews

Gone From My Sight

Good Grief Radio Show with Cheryl Jones

At the end of life, there is so much mystery, so much we don't know. But because of the work of Barbara Karnes, we do have a map of the physical territory. Just knowing that what is happening to a loved one at the end is part of the natural process of dying can be a tremendous comfort. How did Barbara come to write her seminal books to support hospice patients and their families? What feeds her passion for educating all of us about what to expect at the end of life, and how to support each other? What changes has she seen in the field over her long career? Join us to find out.

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The Labor of Dying

Through the Eyes of Women Radio: Corinne Frugoni

“Birth and death are the only two universal experiences in the human condition.”

So writes Barbara Karnes, RN who noticed, after her experience at the bedside of hundreds of people before they died, that each death she witnessed was following an almost identical script. Each person was going through the same thing. And most families had the same questions.

In our society death is practically viewed as optional and is definitely a conversation stopper.  Most of us are woefully unprepared when a loved one dies. Consequently  Barbara took it upon herself to provide instruction to families, friends, caregivers and professionals about the dynamics of dying beginning years to moments before the last breath.

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Gone From My Sight

From Grief to Grace: Chaz Wesley

Twenty-five years ago there was no information available for families about the dying process.
One woman changed that.

Barbara Karnes, RN, has dedicated the last 32 years of her life to the education, care, and comforting of dying people and their loved ones—and the most useful things she’s learned along the way be been distilled into her books. With over 8 million copies sold, "The Hospice Blue Book," Gone From My Sight, changed the way we experience the death of a loved one. Another booklet, My Friend, I Care is a guide through the grief experience—and proves that knowledge reduces fear.

Alaska Radio Show

Print

Pathways to Healing: Death Is a Process

TOWNSEND LETTER – JULY 2016 by Elaine Zablocki

Last fall, my younger brother was diagnosed with cancer,
and I traveled to the East Coast to be with him. For 2 months,
I spent several hours with him each day. My brother had
terminal cancer, acute myeloid leukemia (AML), with only a
few months to live. Transfusions kept him alive.
  He was functioning well. He often had a smile on his face;
he watched football games on Sunday with enjoyment. He was
determined to live as long as possible, and to enjoy the time
that was left to him. At the same time, his body had begun to
shut down.
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Do You Have 'The Little Blue Book' in Your House?

Huffington Post Healthy Living: Judith Johnson

If you are wondering what I'm talking about, it is for you that I am writing this blog! Here's the bottom line: We were all born one moment of one day, and each of us is going to die one moment of another day -- we just don't get to know when that will be. For some of us, that is a major source of anxiety. Furthermore, we live in a society that has kept us in the dark about what to expect when we, or someone we love, dies. This absence of knowledge not only makes us ill-prepared to face death, but it feeds our fear of death, which in turn diminishes our enjoyment of life.

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Hospice Helps People LIVE the Best They Can

Moments of Life: Barbara Karnes

Hospice care has a bad PR image, not because we’re not good at what we do, but because people believe hospice takes care of people who are dying. Since we are a death denying society, no one wants to hear that they need hospice services.

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Three things families need to know when a loved one is dying

Around kitchen tables and in living rooms in homes across the country, more Americans are beginning to have that difficult conversation – discussing their end-of-life wishes. While it's important for loved ones to know the level of care and support you want at the end of life, it also is imperative that we talk about the process of death and dying.

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“This is How We Die”: A Morning with a Hospice Nurse

Confessions of a Funeral Director: Caleb Wilde

On Tuesday morning all I knew was that I was setting up an O’Connor table at the Heartland Hospice event that we were co-hosting. I got the table cloth & brochures all set out, greeted the attendees, and sat down in the back intending to “work” on my computer when the speaker, Barbara Karnes, a hospice nurse of 32 years, began speaking.

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Hospice Care: The Little Blue Book

The Edge: Michelle Markelz

By the time you call hospice care, your house is pretty full. There is a freezer bursting with sympathy dinners, and its door is covered in sympathy cards. Once hospice arrives, it gets even fuller. They bring social workers with cathartic exercises and nurses to administer pain medication. One level-headed person wears scrubs and checks for a pulse while everyone else sobs or considers their grief. But no matter how crowded it gets, there’s always room for the “little blue book.”

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Awards

2015 Silver Award in Health and Wellness

About The Davey Awards

The largest and most prestigious awards competition exclusively for the "Davids" of creativity.
David defeated the giant Goliath with a big idea and a little rock - the sort of thing small agencies do each year. The annual International Davey Awards honors the achievements of the "Creative Davids" who derive their strength from big ideas, rather than stratospheric budgets.

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2015 International Humanitarian Woman of the Year

About The World Humanitarian Awards
The World Humanitarian Awards, working closely with International Film Festivals and International I-Hebat Volunteers, strives to give recognition to people, who work and dedicate his/her life for the betterment of humanity. He/she could be anyone from any kind of profession, from all ages, and from any part of the world. May it be an ordinary man/woman or a nation leader. We value hard works labored for peace and humanity, reaching hungry souls crying for help. Our mission is to promote humanitarian issues and inspire others. May all the good works spread around the globe and become both a living sample and inspiration to others.

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2015 Gold Award in Consumer Education Programs

About National Mature Media Awards
Honoring the best marketing,communications, educational materials and programs for adults.

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2015 Content Marketing Awards Finalist

About The Content Marketing Awards
The Content Marketing Awards are presented and owned by the Content Marketing Institute to recognize
and award the best content marketing projects, agencies and marketers in the industry each year. The
2015 Content Marketing Awards include 75 categories recognizing all aspects of content marketing, from
strategy to distribution, from design to editorial. The Content Marketing Awards is the largest international
content marketing awards program.

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2015 Gold Award in Total Health Information Programs

About National Health Information Awards
Honoring the nation’s best consumer health programs and materials. Now in its 22nd year, the National
Health Information Awards program honors high-quality consumer health information. The awards
program is organized by the Health Information Resource Center (HIRC), a national clearinghouse for
consumer health professionals who work in consumer health education fields.

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2015 Merit for Books/ Publications

About National Mature Media Awards
Honoring the best marketing,communications, educational materials and programs for adults.

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2015 Gold Award of Excellence: Film/Video on Social Issues

About The Communicator Awards
The Communicator Awards is the leading international creative awards program honoring creative
excellence for communication professionals. Founded by communication professionals over a decade
ago, The Communicator Awards is an annual competition honoring the best in advertising, corporate
communications, public relations and identity work for print, video, interactive and audio. The 2015
Communicator Awards received over 6,000 entries from advertising agencies, interactive agencies,
production firms, in-house creative professionals, graphic designers, design firms and public relations
firms.

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2015 Bronze Award for Heath and Wellness

About The Telly Awards
The Telly Awards program was founded in 1979 and is the premier award honoring outstanding local,
regional and cable TV commercials and programs; the finest video and film productions; and online
commercials, video and films.

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2015 International Humanitarian Gold Award

About The World Humanitarian Awards
The World Humanitarian Awards, working closely with International Film Festivals and International I-Hebat Volunteers, strives to give recognition to people, who work and dedicate his/her life for the betterment of humanity. He/she could be anyone from any kind of profession, from all ages, and from any part of the world. May it be an ordinary man/woman or a nation leader. We value hard works labored for peace and humanity, reaching hungry souls crying for help. Our mission is to promote humanitarian issues and inspire others. May all the good works spread around the globe and become both a living sample and inspiration to others.

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2012 Horizon Award for Education

About Nebraska Methodist College

The Horizon Award is the most prestigious recognition award presented by Nebraska Methodist College Alumni Association.
One alum per year per category may be recognized for outstanding achievement in one of the following categories. An alum may receive the Horizon Award only once in their lifetime.

1991 The Heart of Health Care Award

About Kansas University Nursing

The Heart of Healthcare Award recognizes the care, expertise and patient advocacy that nurses provide to Kansas and metro Kansas City residents each year.

“Each winner and nominee has forged a distinguished career that combines outstanding professional knowledge with the unwavering capacity for caring that is the essence of nursing,” said Karen L. Miller, RN, PhD, FAAN, dean of the KU School of Nursing and senior vice chancellor for academic and student affairs, University of Kansas Medical Center. “They have made an indelible mark on the lives of patients and their family members. We will be forever grateful for their dedication and commitment to nursing.”

Film Festivals: New Rules For End of Life Care

Official Selection of The Global Health Film Festival 2015, London

About The Global Health Film Initiative
The Global Health Film initiative is a partnership between the Royal Society of Medicine, the Bill &
Melinda Gates Foundation, and the London School of Hygiene & Tropical Medicine. The primary objective
of the Global Health Film initiative is to use film as a catalyst for discussion and for change. Our activities
will include the establishment of an annual Global Health Film Festival from 2015, based in London with
satellite screenings globally.

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Official Selection of The Global Public Health Film Festival 2015, Chicago

About American Public Health Association Global Health Film Festival
APHA Global Public Health Film Festival showcases films that explore and highlight public health locally,
nationally and globally. Our film festival features public health films of all varieties. The films and related
multimedia educate, inspire and encourage change for a healthier future. APHA's Global Public Health
Film Festival aims to be a catalyst in the movement toward a healthier nation and globe by sparking the
conversation about health in creative ways.

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Official Selection of The Awareness Festival 2015, Los Angeles

About Awareness Film Festival
The mission of the Awareness Film Festival is bringing awareness and to open eyes to some of our
world's pressing issues: Ecological, Political, Health/Well Being and the Spirit. We showcase both
Documentary and Narrative Features, as well as Short Films, Music Videos and Public Service
Announcements. We have filmmaker Q&A's, filmmaker Panels, as well as conscious art and music.
The Awareness Film Festival was formed by Heal One World, a non-profit charity. This Festival is also a
fundraiser for Heal One World.

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Official Selection of Film Fest 52, 2015, Connecticut

About FilmFest 52
FilmFest52 is produced by the organizers of Connecticut Film Festival (CTFF) and The Bethel Film
Festival (BFF) in partnership with The Bethel Cinema. For more than a decade, these three powerhouses
have supported filmmakers and, showcased and premiered cutting edge cinema way before the likes of
the biggest first-tier festivals.

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International Award of Merit: International Film Festival For Environment 2015, Jakarta

About The International Film Festival for Environment, Health and Culture
The International Film Festival for Environment, Health and Culture was established by individuals
concerned for the betterment of humanity, as a means of supporting and promoting filmmakers all over
the world. By uplifting the film industry, festival organizers hope to participate in a cleaner and better
environment, raising the quality of life and intercultural dialogues for better acceptance and deeper
understanding of people and diversity in life.
Its main mission is to promote films pertaining to environmental, health and cultural issues, each with their
unique methods of storytelling.

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